Overview of Our Original Study

Research Objective and family selection criteria:

Our research approach:


  1. They have important insights to share and help other families. However, their ISOLATION takes them out of the mainstream of society so sharing of insights and answers is limited.
  2. No one, Pastor, Educator, Doctor, etc, ever asked us about US
  3. No one ever asked about the rest of our family (nuclear & extended) and how they are affected
  4. No one ever asked us about OUR faith expectations
  5. No one ever asked us about our support system (Personal, relational, professional, educational, medical) or lack thereof, and why.
  6. No one ever asked us about the difficulty of daily or routine tasks.
  7. No one ever asked us about what stresses US.
  8. No one ever asked us about what encourages us and what discourages us.
  9. The ‘system/culture/norms/lack of time/lack of good solutions’ do not encourage us to talk about these things (1-8 above).  This was the first time for many talking about these areas of holistic family life.

Each of these areas is ripe for innovative new solutions to improve the quality of family life.
Our research revealed:

Our research revealed maybe the greatest insight of all . . . .

‘The Power of Process & Personal Presence’